I’ve been battling severe migraines and vertigo for years now. The vertigo (dizziness) started when I was 10 years old, but the migraines recently started when I was 15. The recent combo has been so bad that I’ve missed a lot of school last year! I missed around 30 days, I took an AP Chemistry class and that added stress did not help either.
In January after a while of struggling with my illness to no end we found a neurologist that would listen to me and help. He diagnosed me with Vestibular Migraines, and I’ve been testing out medications for months now. I test out the medication for 3 weeks then he ups the dosage if it doesn’t work then he switches me off of it and we try a new medication.
Nothing so far has worked the medication is for the migraines- not the dizziness. There is a medication for vertigo but it hasn’t helped me. The medications I’ve been on are Trokendi (all different dosages) and Nortriptyline again all different doses, I was on another one for a short time too but I forget the name. With the Nortriptyline the top side effect I got which was dry mouth it was horrible! My mouth was literally a desert no amounts of water could keep it dry, and Trokendi I have had a little numbness in my hands. The next route in medications is trying blood pressure medications.
The neurologist suggested I start Vestibular Therapy or Balance Therapy, I’ve been going twice a week and I can say it’s helped my balance A LOT! I have exercises to do too, head movements, eye movements, and balance things.
I start eye therapy next week too. My head and eyes don’t work together, so they think that’s what’s causing the severe migraines. It’s all so crazy and frustrating!
Diet is another option we looked into I’ve stopped eating cheeses, ham, and other things that I can’t/shouldn’t have. It’s been hard substituting for it especially because I go to school I’ll pack a salad with chicken and vegetables. No more chips and no more Starbucks or Diet Coke for me:( I think I still crave my a mocha from Starbucks but if it helps my head I’m all for it. Now it’s rather hard to follow the food list to a “T” so if I have a sandwich I have turkey (I can have that) with no cheese and lettuce. Then I have popcorn it’s called boom chicka pop popcorn, a vegetable, a fruit no bananas anymore:( and a Kind bar.
Here’s the full list of what you shouldn’t eat if your interested this is a basic list, at my neurologist he gave me a longer list that goes as far down as herbs, and oils! Very hard to follow when you go out to eat a lot like I do!
- Aged or ripened cheeses (examples: Cheddar, Gruyère, Emmenthaler, Stilton, Brie, Gouda, Romano, Parmesan, feta, bleu, Camembert)
- Foods containing large amounts of monosodium glutamate (MSG). Asian foods often have large amounts of MSG.
- Smoked, cured, or processed meats such as bacon, sausage, ham, salami, pepperoni, pickled herring, bologna, chicken livers, and hot dogs
- Food prepared with meat tenderizer, soy sauce, vinegar (except white vinegar), or yeast extract; and food that has been fermented, pickled, or marinated
- Pea pods and pods of broad beans such as lima and navy beans
- Onions, olives, pickles
- Alcohol (especially red wine, port, sherry, Scotch, gin, and bourbon)
- Sour cream, yogurt, buttermilk
- Hot fresh bread, raised coffee cake, doughnuts
- Excessive aspartame (artificial sweetener)
- Chocolate, cocoa, carob
- Nuts, peanut butter
- Certain fruits, including figs, avocados, raisins, red plums, passion fruit, papaya, banana, and citrus fruit
- Excessive tea, coffee, cola
- See more at: http://vestibular.org/migraine-associated-vertigo-mav#sthash.AX4veHK7.dpuf
Other options I can try are acupuncture, Botox, and a chiropractor. I should also be getting a massage every two weeks because my neck, shoulder, and back are so tight because I don’t move my eyes without my head moving with it. So I’m always guarded if that makes sense!
Anybody have migraine/headache remedies? I’ve tried crazy things like soaps, lemon peels, different oils, and ice bands:)
Lastly, I found this on the internet and think this is very sad but true, my family does this a lot and I thought it was just my family telling me my migraines are just headaches. The link is under the picture it has interesting facts about migraines.
I would really love to hear from fellow bloggers on any thing that could help that’s why I’m putting my diagnoses out in the open!:)